Monday, March 5, 2018

Happy Anniversary

So, we've gone another year around the sun together, he and I. We were so young and bright-eyed, with no idea what adventures we would have and what misadventures we would endure together. They said it wouldn't last. My mom agreed. Even I, if I had to be completely honest, had my doubts. Who doesn't? It's a scary proposition to make those promises to stick by a person, come what may and no matter what. It's a major commitment.

Our wedding day was gray and gloomy and cold, the last day of February. And then it rained. Boy howdy, did it rain! Sheets. Buckets. Rivers. And the wind! The bridal party was delayed leaving my mom and dad's place because the front walkway was submerged below inches of water, as was the car park. Finally, unable to hold off any longer lest the bridegroom change his mind while waiting interminably for the bride to show up at the church, my mom wrapped my gown in layers and layers of dry cleaning bags. We waded out into the tempest to the waiting vehicle, my father holding an umbrella over me to protect my hair and makeup and the beautiful gown I was carrying in my arms. The gown I had designed and my mother had lovingly made for me. He mostly succeeded.

Weren't we cute?
At the church, we were unable to find an open room in which to change clothes, so that delayed us even more. Once dressed and ready, I realized I had forgotten my shoes at the house! Was somebody trying to tell me something? My older brother was so gracious in volunteering to go back and get them for me. Finally, only half an hour late, I walked down the aisle on my father's arm. I was so nervous, I was as pale as my dress. The groom looked relieved to see me. And kinda scared. That was 48 years ago.

To celebrate our anniversary, we generally go out to dinner. This year was no exception. He used to pick the restaurant, but now that's up to me. And I love sushi. I should have known this wasn't the best idea for him at dinner time, but we'd had Japanese food at lunch not long ago with no issues. Our day had been going really well, and it just never occurred to me that this wouldn't be a good plan. But even though we are not strangers to this restaurant, everything about it was disorienting and confusing for my husband.

And a few days later,
here he is using a couple
of stir sticks as chopsticks
 to eat the jelly at a restaurant.
Go figure!
He seemed to think the chopsticks were straws, put them in his water glass, and tried to drink through them. He couldn't figure out how to sip his soup by picking up the bowl. Or how to pick up the bowl. I got him a fork for eating, because obviously chopsticks weren't going to be happening.

I felt so bad. He didn't really enjoy the delicious food, because it was too complicated for him. So many things were in the little sections of the bento tray, a confusion of overlapping colors and shapes and reasons for being. The green of the salad touched the green of the wasabi in the next little section. I quickly removed that from his tray, lest he pop the whole thing in his mouth with distressing effect. The dark sauce for dipping the tempura vegetables was in a dark little bowl, the miso soup was in a small bowl of the same color, the tea was in a cup with no handle. And also the same color.

I removed items from his tray and separated the other foods to make it easier for him to distinguish between them, and I encouraged him to eat this and that, pointing with my chopsticks. But he didn't seem to really comprehend my meaning. That's happening a lot these days. Is he not hearing me, or is he not tracking with me? It's hard to say. He did finish the meal, more with relief than with any real joy. It was disappointing.

Happy anniversary anyway, Baby. I'm sorry the dinner wasn't what I'd hoped, but I'm glad we were able to celebrate one more year together. We showed 'em, didn't we?

Sunday, February 11, 2018

You Were the Best

A couple of my husband's former colleagues came by for a visit this weekend. It was a perfect time of day, with sundowning hours away. My husband was cheerful and friendly. Though it was clear he wasn't tracking with the conversation at all, he did try to participate and was enjoying himself. I was glad to see him happy, the center of attention.

Just as everyone does with long-time friends, we talked about our families, caught up on other news, suggested films to each other, mourned friends and co-workers who had passed, and chatted about what we're up to now. What we're up to here is pretty much obvious, and the sadness in our guests' eyes at that realization would have been difficult to miss.

At one point, while our visitors were doing their best to casually bring memories forth so that my husband might better understand who the folks in front of him actually were, one of them said, "You were the best manager I've ever had." That comment, so sincere and unsolicited, brought tears to my eyes.

It's been a lot of years since my husband retired and a lot more years than that since either of these two wonderful people worked with him (though we have seen them both on occasion), which made the visit that much more special to me. The affection those who have worked with and for him continue to have for him speaks volumes about the kind of presence my husband was in the workplace. He worked hard, but he also had fun. He was an encourager, a good friend, and an advocate for his team. They could count on him. He led by example and always tried to be fair.

I appreciate these little reminders now and then. They're something for me to hold on to when my husband isn't exactly the guy I remember from days gone by. Thank you for coming over, dear friends!

Saturday, February 3, 2018


Tomorrow, my husband comes home from the memory care facility. He's been there for almost a week to give me a chance to rest, catch my breath, and enjoy a brief time of refreshing.

I find that I certainly do miss him when he's gone. My heart yearns for him even though, let's face it, taking care of him and anticipating his needs and moods as the disease progresses has become bone crushingly stressful. But taking care of a person is not the same as caring for a person, and I do care for him deeply. Perhaps more deeply than I knew. The thought of him being permanently gone from home someday fills me with sorrow.

That being said, I noticed today that I was starting to feel almost relaxed, that my thoughts were less fragmented, and that I was actually cheerful. So I'm feeling more like me and less like someone who's mentally and emotionally cowering in a corner. But it's taken almost six days to get to this point. This tells me that the next time I arrange respite care, it needs to be for a bit longer period of time.

I was nervous about how he would adjust to being away from home and from me, and I was also concerned that the staff would find him a bit of a challenge. The first time I tried respite, just over a year ago, it was an absolute disaster for both of us. I hoped this time would be better, and it apparently has been. Naturally, I've called to check on him, but not every fifteen minutes (okay, except the first day or two). The caregivers are, after all, there to give care rather than to take phone calls from anxious relatives imagining all kinds of unpleasant scenarios. I was reminded once or twice that I needed to rest and relax. And that they would call me if the need arose. I took that to mean, "Lady, don't drive us nuts over here!"

So, tomorrow, he'll be coming home. I hope his transition back to our normal routine will be smooth and relatively peaceful. I imagine myself entering the facility, seeing him, joyfully giving him a big hug. I hope he will be just as happy to see me.

Tuesday, January 30, 2018

A Thousand Deaths

This disease!
It's like dying a thousand deaths
Haunted by the past
Haunted by the present
Haunted by the future
Back and forth
Day in, day out
Every day again
Over and over
It never ends
It's torture

One memory after another
One worry after another
One foreboding after another


Remembering yesterday
Living today
Dreading tomorrow
Moment by moment
Letting go
Taking back
Letting go
Taking back
Not ready to let go

My head says one thing
My heart another
It just won't listen
It's too stubborn
Too deeply attached to stop loving
Too optimistic to despair
To foolish to give up

And yet
Accept it must
But at what cost!
Crushing heaviness
Powerless resignation
Passive acquiescence
Melancholy loneliness

Everything in me rebels
I banish the thought
I take a deep breath
I am not alone
And never will be
God has not forsaken me
He envelopes me in love
He gives me hope
I give Him trust
He is good
Always good

Monday, January 29, 2018

Old Maid

A couple of weeks ago, I played UNO with the grandkids, and it was fun and easy. I thought I'd try a children's card game with my husband to pass the time, since I'm running out of creative ideas for keeping him occupied and interested.

I went all over town looking for an UNO game, but apparently they were sought-after stocking stuffers last Christmas. There were none to be found. So, I went through the kids' old rooms in search of something, anything, that would resemble it. I found an Old Maid card game. Thinking this was simple enough (match the cards), I gave it a go.

But he really couldn't figure out what he was supposed to do, and it ended up being an exercise in futility and frustration for me. Two days in a row. Two days that, actually, were very good days for him (and therefore for me). Two days when he was functioning at the top of his current game.

It might be hard for you to imagine someone not being able to match two pictures together, or two words together. I know it was hard for me to wrap my head around the fact that this simple children's card game is too hard for my husband, a man with degrees in computer science and electronics.

So, I'll keep looking for UNO. It might be easier. You just have to match colors or numbers. Wish me luck in finding it before the respite week is up and he returns home.

Sunday, January 28, 2018

The Day Before...

Napa Valley Vineyard
All rights reserved
Tomorrow is a big day for us. We are going to try a one-week stay for my husband at a memory care facility about 40 minutes away. This is partly because I need a break, and it's partly because I want to make sure it's going to work. We've had a week or two of pretty good days, which I know will make tomorrow all the more emotional and guilt-inducing. But that isn't what this post is about.

Anyway, I wanted to make today all about him, doing the things he enjoys most right now. Those would be eating and riding in a car. We had lunch at a local restaurant, and then I decided to drive up the east side of the Napa Valley, up Silverado Trail to Calistoga. It was an absolutely spectacular day. Warm temperatures, bright sunshine, blue skies, beautiful scenery. It's been a while since I drove up that side of the valley, and it's really lovely.
As we came around a bend revealing a particular scenic vista, I exclaimed, "Wow. It's really beautiful up here, isn't it?"

"Yes, it is," he replied, "But it isn't really made out of leather."

I had to smile.

We had a snack in Calistoga, stretched our legs as we walked down the main street of this quaint town, then headed back down the west side of the valley via Highway 29. It's very pretty there, too, but lots busier. And the road is flatter and straighter and goes through several towns rather than simply meandering through vineyards. If you've never been up Silverado Trail, give it a try. You'll find lots of wonderful wineries there, too, that are open just for you.

It's been a pretty good day.

By the way, kudos to the first responders who kept people safe and also protected their property during the fires last fall. My goodness, it's just amazing that some of the properties we saw were preserved! Absolutely astounding. But the spring grass is growing, and soon the scars left by the flames will fade, except in the memories of those most affected.

Thursday, January 4, 2018

An Ode to Sleep

Oh, Sleep! Oh, Sleep! What a gift you are from God!
You restore me physically;
You restore me emotionally;
You restore me mentally.
Without you, my sense of humor vanishes into thin air.
My body is a burden to me, and my breathing is painful.
My steps are halting, and my duties are overwhelming.
I know I am not equal to the task without you,
And I face my day with great trepidation
Knowing there will be no rest found in it for me.

Oh, Sleep! Oh, Sleep! What a gift you would be from God!
You elude me while he dozes;
I feel your onset, but he startles awake
And sits bolt upright on the edge of the bed, fidgeting.
You vaporize as he wanders around the room,
And I lie awake, ever vigilant, until he returns.
He requires coaxing to lie down as he sits in a daze, confused.
Finally, finally, his legs make it under the covers,
And he snores immediately, but only for a little while.
You elude me while he dozes and approach as he startles awake.

Oh, Sleep! Oh, Sleep! How I long for you! How I need you!
How pleasant it would be, what a gift it would be
If only you would arrive as quickly for me as you do for him,
And if only you would stay awhile so both of us can rest.
Ah, Sleep! There you are, like a cloud of vapor enveloping me
As I drift off into a dream, a stressful dream with no restoration;
A dream with no beginning, no resolution, just confusion.
Alas, Sleep! His footsteps approach and I cannot embrace you.
He stands over me to announce his presence, "Hello? Hello?"
Oh, Sleep! Please. I am not ready for another day without you.