More Seizures

February 12, 2019

A week ago today, my husband had two seizures in less than 12 hours. It was the first time, as far as we know, that he experienced more than one seizure in one day. Or even in one week. His medications were adjusted once again. There has been quite a bit of that, as everything is experimental at this point. The combination that's successful today might not be effective tomorrow.

The next day, he was somewhat lethargic and recovering from the event. He had bitten his tongue and cheek rather badly, so eating was uncomfortable. But he did eat and drink, so that's good.

The day after that, in the morning, I received a phone call from the hospice nurse. Usually when I receive a call from either the facility or the nurse in the morning, it isn't a good thing. So when I heard her voice, I was instantly -- and understandably -- apprehensive. But she wasn't calling to give me bad news. She was calling because she wanted me to know how surprisingly alert he was, how he had sat down next to her and smiled pleasantly, how responsive he was to her questions. She hoped he could "talk" to me on the phone, but he was unable to figure out how to navigate that. I heard him cheerfully say one or two words to her in the background, and it made me happy to hear his voice.

The previous time he had a seizure, in early January, he was also more alert once he had recovered from the event. For a day or two, anyhow. It's odd, and I have no explanation for it; but, I thought I'd mention it in case one of you dear readers can offer any insight.

So far, he seems to be supporting the change in medications very well. On another positive note, and there's no way to tell if it's because of the medications or if it's the progression of the disease, the staff members told me he isn't putting up as much of a fuss when it comes to personal care. We don't know if that's a passing thing or if it's the "new normal," but we'll take it!